Pietrosfight.org is a nonprofit organization dedicated to raising awareness and funds to find a cure for Duchenne Muscular Dystrophy. It was founded by Manni and Dayna Scarso in 2012 after the couple learned the devastating news that their then-3-year-old son Pietro was diagnosed with Duchenne Muscular Dystrophy (DMD) – the most common and lethal childhood genetic disorder in the world affecting one in every 3,500 male births.
Most children with DMD are confined to a wheelchair by the time they are 12 years of age, and succumb to the disease in their late teens due to respiratory complications. To date, there is no acceptable treatment or cure for DMD, a realization that temporarily paralyzed the Scarso’s and their family; but not for long.
Feeling revitalized by the love and support of family and friends, Dayna and Manni Scarso were determined to save Pietro and the thousands of boys like him by establishing a foundation focused on searching for and funding DMD research that will ultimately cure this deadly disease. The funds they raise support the most promising research programs aimed at treating and curing DMD. For the first time ever, there is hope to find a cure for this destructive disease in time to save Pietro and many other boys and their families.
Please help us in Pietro’s fight. Donate what you can today.
A Cry for Help
Pietro IS the perfect angel. He was given the #1 sharer award in his nursery school program because if someone falls, he is right there to wipe their tears and pick them up. However Pietro’s huge smile hides what’s really going on inside his body, for his muscles are deteriorating at an alarming pace.
Today we are here to pick him up, and save his life. Unless a cure or treatment for Duchenne Muscular Dystrophy is found, Pietro will lose his ability to walk by adolescence, and will subsequently lose all muscle function. Like all boys with Duchenne, he will die from respiratory or heart failure in his late teens or early 20s.
Well we are certainly not going to accept this without a fight! With the help and support of our dear friends and family, we have hope. Visualize positive things and positive things will come your way! Please find it in your heart to look deep into this incredible smile, and reach into your pocket to help us find a cure.